Omphalocele Awareness

Omphalocele   Awareness

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Omphalocele Awareness Day - January 31, 2015

We are spreading the word to raise awareness about Omphalocele (also known as Exomphalos). Please help us by sharing the following information on Facebook, Twitter, Email, Blogs, and word of mouth!

An omphalocele is a birth defect that occurs early in pregnancy, in which the abdominal wall does not close properly, and some or most of the abdominal organs protrude into the umbilical cord. It is estimated that a smaller omphalocele occurs in 1 of every 5,000 pregnancies, and a large or giant omphalocele occ...urs in 1 of every 10,000. This is typically diagnosed through an ultrasound. An omphalocele may be isolated, or may be associated with other defects and/or chromosomal abnormalities.

Despite the challenges a baby born with an omphalocele may face, there is much hope for them! We in the Omphalocele Community have a goal to share with parents and members of the medical community information and support that will give these special babies the best chance possible. Many babies who were born with omphalocele have survived and gone on to live happy, healthy lives. We need everyone's help to make sure that each family given this diagnosis knows that there are others like them out there.

Join us in spreading omphalocele awareness! Wear black and white, the colors of the Moo's - Mothers of Omphaloceles, to show your support this January 31st! Help us reach out to families of O babies everywhere, so that they will know they are not alone, and help us spread the word that omphaloceles are a treatable condition.

-Sarah Doyle, a MOO and the creator of Omphalocele Awareness Day

Help us declare January 31st, National Omphalocele Awareness Day!


Sign the petition here: https://petitions.whitehouse.gov/petition/declare-january-31st-national-omphalocele-awareness-day/3B0QhKsB

JOIN US SOON!

       Our 4th Annual         Omphalocele Awareness Day  on January 31, 2015

Check back soon to view the link to join the event on Facebook!